【心內話】看不見也不害怕 | 鏡週刊 | LINE TODAY

https://today.line.me/tw/v2/article/79xxY8?utm_source=lineshare

【心內話】看不見也不害怕

國三時,眼睛漸漸看不見。我在聯絡簿上寫:「坐著也有事,躺著也中槍。」那時好生氣,我明明沒做壞事,難道是中邪? 小時候視力很好,夢想當棒球選手,我跟大多數男生一樣,喜歡看動畫、打電玩,記得神魔之塔練到二百級的時候,眼睛看不清楚,想說近視了,檢查視力右眼1.0,左眼竟然看不到,去好多家醫院檢查,怎麼治療都沒效。後來才知道我得了罕見疾病「雷伯氏遺傳性視神經萎縮症」,大概一年後吧,右眼也看不到了。 你試著

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originally written by Lin
目前就讀清華大學二年級的吳承澐,因罹患罕見疾病雷伯氏視神經病變,14歲發病後視力急速衰減將近全盲,只能從眼角餘光看到模糊的黑白世界。

References

https://www.cna.com.tw/news/ahel/201912130219.aspx

黑白琴鍵演奏樂章 視障吳承澐飄生命色彩音符 | 生活 | 中央社 CNA

清華大學鋼琴創作學生吳承澐克服幾近全盲的視障逆境,不但暑假獨自到台東打工換宿,還成功挑戰攀岩。他近日出版鋼琴創作專輯,今天回母校永平高中以音樂分享生命鬥士故事。

https://www.cna.com.tw/news/ahel/201912130219.aspx

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