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「AADC」罕病治療藥一劑1億元納健保 單價刷新紀錄 | 中央通訊社 | LINE TODAY

https://liff.line.me/1454987169-1WAXAP3K/v3/article/LXNQlpl?utm_source=lineshare
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這則訊息中需要特別留意的地方是「罕病AADC缺乏症基因治療藥物納入健保暫予支付，終生僅需施打一次但要價高」。閱聽人需要注意這部分，因為治療藥物單劑價格高達1億元，這樣的高價格可能引起社會對於醫療費用公平性和可負擔性的討論，也可能影響到罕見疾病患者的權益和醫療保障。閱聽人在閱讀此類訊息時，應該思考醫療資源分配的公平性、罕見疾病患者的權益保障等議題。
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